Type 1 Diabetes Facts

About T1D

Type 1 diabetes (T1D) is an autoimmune disease in which a person’s pancreas stops producing insulin, a hormone that enables people to get energy from food. It occurs when the body’s immune system attacks and destroys the insulin-producing cells in the pancreas, called beta cells. While its causes are not yet entirely understood, scientists believe that both genetic factors and environmental triggers are involved. Its onset has nothing to do with diet or lifestyle. There is nothing you can do to prevent T1D, and—at present—nothing you can do to get rid of it.

Whom T1D Affects

Type 1 diabetes strikes both children and adults at any age. It comes on suddenly, causes dependence on injected or pumped insulin for life, and carries the constant threat of devastating complications.

How T1D Is Managed

Living with T1D is a constant challenge. People with the disease must carefully balance insulin doses (either by injections multiple times a day or continuous infusion through a pump) with eating and other activities throughout the day and night. They must also measure their blood-glucose level by pricking their fingers for blood six or more times a day. Despite this constant attention, people with T1D still run the risk of dangerous high or low blood-glucose levels, both of which can be life threatening. People with T1D overcome these challenges on a daily basis.

Insulin Is Not a Cure

While insulin injections or infusion allow a person with T1D to stay alive, they do not cure the disease, nor do they necessarily prevent the possibility of the disease’s serious effects, which may include: kidney failure, blindness, nerve damage, heart attack, stroke, and pregnancy complications.

The Outlook for Treatments and a Cure

Although T1D is a serious and difficult disease, treatment options are improving all the time, and people with T1D can lead full and active lives. JDRF is driving research to progressively remove the impact of the disease from people’s lives until we ultimately achieve a world without T1D.

Statistics

• As many as three million Americans may have T1D.1

• Each year, more than 15,000 children and 15,000 adults—approximately 80 people per day—are diagnosed with T1D in the U.S.2

• Approximately 85 percent of people living with T1D are adults, and 15 percent of people living with T1D are children.1

• The prevalence of T1D in Americans under age 20 rose by 23 percent between 2001 and 2009.3

• The rate of T1D incidence among children under age 14 is estimated to increase by three percent annually worldwide.4

• T1D accounts for $14.9 billion in healthcare costs in the U.S. each year.5

Warning Signs

Warning signs of T1D may occur suddenly and can include:

• Extreme thirst

• Frequent urination

• Drowsiness or lethargy

• Increased appetite

• Sudden weight loss

• Sudden vision changes

• Sugar in the urine

• Fruity odor on the breath

• Heavy or labored breathing

• Stupor or unconsciousness

What Is It Like to Have T1D?

Ask people who have T1D, and they will tell you: it’s difficult. It’s upsetting. It’s life threatening. It never goes away. But at the same time, people with T1D serve as an inspiration by facing the disease’s challenges with courage and perseverance, and they don’t let it stand in the way of achieving their goals.

“Both children and adults like me who live with type 1 diabetes need to be mathematicians, physicians, personal trainers, and dietitians all rolled into one. We need to be constantly factoring and adjusting, making frequent finger sticks to check blood sugars, and giving ourselves multiple daily insulin injections just to stay alive.”
— JDRF International Chairman
Mary Tyler Moore

“It is a 24/7/365 job. We never get to relax and forget about food, whether we’ve exercised too much or too little, insulin injections, blood-sugar testing, or the impact of stress, a cold, a sunburn, and on and on. So many things make each day a risky venture when you live with T1D.”
— Mary Vonnegut, adult, Rhode Island

“Unlike other kids, I have to check my blood sugar 8 to 10 times a day; everything I eat is measured and every carbohydrate counted. My kit goes with me everywhere I go … Too much exercise or not eating all my food can be dangerous. I think I’m too young to have to worry about all this stuff.”
— Jonathan Platt, 8, California

“It controls your life in ways that someone without it doesn’t even see. For me, the worst part of living with T1D is the fear that my three children or their children might develop the disease.”
— Nicky Hider, adult, New York

1 Type 1 Diabetes, 2010; Prime Group for JDRF, Mar. 2011
2 NIDDK: diabetes.niddk.nih.gov/dm/pubs/statistics/index.htm#i_youngpeople
3 SEARCH for Diabetes in Youth data by the Centers for Disease Control and Prevention and the National Institutes of Health.
4 IDF: idf.org/diabetesatlas/diabetesyoung-global-perspective
5 The United States of Diabetes: Challenges and Opportunities in the Decade Ahead, 2010; United Health Group: unitedhealthgroup.com/hrm/UNH_WorkingPaper5.pdf